The SCCL-PPI model has been developed based on a literature review that was conducted to identify existing frameworks in cancer research internationally.
Nine models from seven different countries were taken into consideration – leading us to propose a model that is adapted to the specific needs of our local context: French-speaking Switzerland.
To learn more about the development of the SCCL-PPI model, we invite you to take a look at our website as well as the article we published in the Revue Médicale Suisse.
STAGES: Patients and the public can be involved at all stages of the research process, and in one or more phases of a research project .
LEVELS: In the context of the SCCL-PPI model, and based on the type of research envisioned, we define 4 different levels of patient involvement in research.
TYPES & ROLES: Patients’ roles vary according to the contributions a patient is able to offer. To use patient knowledge to the best effect, ways must be found to convert the diversity of individual experience into the closest representation of a typified patient perspective. The patient voice must be a blend of collective and personal experiences. A way to overcome this is to include more than one patient and covering more than one type of involvement.
CAPABILITIES & CAPACITY: Furthermore, the decision regarding the stage, level, and type of involvement requires a careful evaluation of the capabilities of the patients as well as the capacity of the research group or organization.
